Supports

Care Points
Simmons College school for special health studies
http://www.endoflifecommission.org/eoldb/boston/carepoints.htm

Children with Special Health Care Needs
www.hcfama.org

Disabilities Resource Network at JFCS
www.jfcsboston.org

Easter Seals
Equipment, education and loaning program
www.eastersealsma.org

Epilepsy Foundation of MA and RI
www.epilepsyfoundation.org

Family TIES
Resource network for families whose children have special needs.
www.massfamilyties.org

Federation for Children with Special Needs
www.fcsn.org

Hospitality Homes
Families open their homes to families whose children are being treated in Boston hospitals
www.hosp.org

Kids with Tubes
Support for families of children with g-tubes
www.kidswithtubes.org

Make a Wish Foundation of Greater Boston
Dedicated to granting the favorite wishes of children diagnosed with life threatening illnesses
www.mass.wish.org

Massachusetts Brain Injury Association
www.mbia.net

Massachusetts Down Syndrome Congress
www.mdsc.org

Mass Family Voices
www.massfamilyvoices.org

Massachusetts Spina Bifida Association
www.msbaweb.org

Muscular Dystrophy Association
www.mda.org

National Organization for Rare Disorders
www.rarediseases.org

Parents Helping Parents
Statewide network of support groups for parents who want to improve their relationships with their children.
www.parentshelpingparents.org

Spinal Muscular Atrophy Foundation
www.smafoundation.org

United Cerebral Palsy of Metro Boston, Inc.
www.ucp.org

VHL Family Alliance
Von Hippel-Lindau disease support group
www.vhl.org

Yesodot
Support group for Jewish families whose children have special needs
Sue Wolf-Fordham
(617) 542-1993, ext. 299

Organizations, products and websites are listed as a public service, and are not endorsed, recommended, or validated by the H.A.L.O. Foundation or Family Circle. Contact Family Circle for additional information.

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